Friday, March 8, 2013

Biggest Aggie Fan!

He won!  Tayton was so excited to win the Lil Aggie Photo Contest!!!!!!!!!!!  Here is a picture of his face when I told him that he won! 



  I tried to record a victory dance but every time I get out the recorder he shuts down and gets mad.  Here is a little video I took on my phone, sorry not the best quuality.  He is on steroids so he gets a bit mad at the end but I think it is pretty funny.  I love his voice when he is talking, you can tell how excited he is.  Tayton got to choose between $400.00 to the USU bookstore, or season basketball or football tickets.  He wanted season football tickets.  It was amazing on the timing because right when they called to tell us about the prize, we had just finished up physical therapy and doctors apt. at the Burn Unit.  Dr. Morris, the chief at the burn unit, told us he has seen patients need as many as 20 different surgeries to fix their airways and we have a really long road ahead of us.  Me and Tayton were pretty down and we were headed to our next apt at Primary Childrens when we got the call.  Tayton was so happy and it was so neat that he has something to look forward to besides surgery.  So thank you, thank you, thank you to everyone who voted for him.  It cheered all of us up.  I never thought that putting a picture on a facebook contest could make such a difference.  The support this little guy has is amazing.
Here is a picture of his victory dance!

Here is proof he has been an Aggie Fan for a long time.  This is Tayton when he was 2-3 months old with one of his best buddies Big Blue!

 Right now the biggest issues with Tayton is his breathing, physical therapy, and sleeping.  Every night is a fight for him to go to bed.  He wants to sleep in our room and this is how this little boy sleeps.  He takes up the entire bed and he is constantly hitting me with his splints.  They hurt.  His room is right next to ours.  We tried having him sleep on our floor, but he always climbs up in bed with us when we are asleep.  So then we tried him in Tannas room but same thing he comes in 4-5 times a night.  I asked him why he wants to sleep right next to me and he says because I just love you so much mom and I feel safe by you.  How do you not just want to grab your little guy and hold him all night long after he says something like that.   I know I am a lot of the problem, but he just has been through so much that I want to give him whatever he wants.  Plus I am also scared of his breathing so I want to be able to hear him.  We are a fine pair between the two of us.  I am just torn between what to do, part of me knows it would help him phycologically if his can start sleeping in his own room, but the softy in me wants to just shelter him forever and keep him glued to my leg.

I am hoping his surgery next Friday will help so much with his breathing that maybe I can calm down and feel comfortable and not worry so much about him when he sleeps.  Then he might feel better if I do.  So his surgery of Friday they are going to laser off the portions of his vocal chords that are blocking his airway and I guess scar tissue will grow back and that is why he will have so many surgeries.  It will be a lot of the same thing, just removing scar tissue and vocal chords.  Dr. Morris said that a lot of patients with inhalation burns end up on a permanent tracheotomy, but he doesn't think Tayton will need that as long as these surgeries work.  He said Dr. Smith at Primary Childrens is one amazing doctor and we are in really great hands.  He also said if we don't do this surgery eventually his scars and vocal chords will block his airway completly, so we can either do it now, or wait until it becomes critical and then do it.  So I think it is a good thing we are doing it now.  Well that is our Tayton update and I will let you all know how his surgery is next week.  This week I just plan on recording his voice as much as I can.


Last night I had such a great night with my little Tanna.  I took her to Disney on Ice.  She had a blast.  I didn't tell her where we were going, but I had her in dress up in her princess dress.  We hopped in the van and I told her "Tanna buckle up please, " and she said "Mom, don't you mean beautiful princess Tanna,"  it was so cute.  She did look so beautiful.  Tayton got to stay home with dad, and he decided for their time together he wanted tacos and to play Indiana Jones on the Will.  So everyone had a fun time last night.  Here are a few pictures from our date night.




 I decided to take her on the front-runner instead of driving, so here she is so excited for the train to leave.
 Waiting for the show to start and yep she was to cute, I couldn't say no to her when she wanted one over-priced snow cone.

















Mom and Tanna after the show.  She loved it and was singing along to all the songs.  It was so fun to spend some time with her.  I feel like she has been pretty neglected by me, because most of my time is with Tayton doing therapy, school, or other things.  And I know with baby Blakeli coming soon that the time I do spend with her will even get shorter, but I wanted her to know that she is one special little girl and that her mommy still loves her and is so proud of her for being such a good helper with everything going on.  I know I need to make more time for her.  So we are going to have a date night every month.  Me and Levi will switch off between each kid.  I can't promise Disney on Ice every time though.

4 comments:

Marilyn and Mike said...

Dear Kali - Tell Tayton congratulations for winning the Aggies fan contest - he deserves to win being a "lifelong" fan! Way to go! What a wonderful night out for Tanna and you both, she is indeed a beautiful princess. After all Tayton has been through I can understand how much more comforting it is for all of you to have him in bed with you. Nighttime snuggles and listening to him breathe help you all sleep better. We are keeping Tayton in our thoughts and prayers and hoping he will continue to amaze the doctors and have an outstanding recovery and not build up scar tissue too fast. He has such strength and with his beautiful smile and twinkling eyes he continues to inspire us all. Take care - Mike and Marilyn

Stephanie said...

Hi Kali,
I don't know if you remember me, but we were in the same ward at USU when we lived at Blackhawk. Somehow I found your blog through another blog that I follow and have been trying to catch up on all that you have been through in the last few months. Tayton is such a fighter and I pray for continued miracles for him and your family!

Stephanie Leonard

Marilyn and Mike said...

Kali - we will be thinking of you and Tayton tonight and during the surgery tomorrow. We can only imagine how scarey this is for you both. Remember how much we care and we are keeping you in our thoughts and prayers for a speedy recovery. Please post soon! Sleep tight - Mike and Marilyn

Unknown said...

Kali,
good luck tomorrow. Please know that we are here if you need anything. We are rooting for all of you! - Amber and Tyler