Saturday, December 15, 2012

Not what we expected

Happy one month anniversary to us of being in the hospital. What a fun anniversary. So the morning started out a little scary. We stayed really late last night at the hospital and then we woke up to a phone call from the doctor. You know it is never good when the doctor calls. Well Tayton had managed to cough the ventilator tube out. It scared me to death because I thought I would have redo what we did on Monday and emotionally I was not sure I could have dealt with that. But we raced to the hospital and Tayton had an oxygen mask on and was watching cartoons. He was struggling a bit to breathe but not anything like what happened on Monday. I was still really nervous but I knew I had to be strong for my little guy. It just really surprised me to because the goal for today was to lower his ventilator settings a little bit. He was still on really high ventilator settings when it came out.-----------As of now he has been off the ventilator for 12 hours. I think it is to early to get excited because he still struggles, but he did a million times better then what he did on Monday so even if the ventilator has to go back on at least we improved a ton. He aslo got his chest tube out today that drains the fluid from his lungs. He just hadn't had any fluid out the last day or two which might explain why he is doing so much better breathing. Then two days ago he got the tube from his stomach out. So good times when you can gets tubes out.----------He tries to talk but his voice is so horse and we tell him not to talk so he can focus on just breathing. We watched a little of the USU Potato Bowl today and he got a little to excited when they scored a touchdown. His little heart rate went way up. It is really hard to not overstimulate him, and when he gets to excited his breathing gets harder. So we are just trying to keep it really calm and mellow for him. He is taking a nap right now. So sorry but we are not allowing any visitors until we can get his breathing under control. But hopefully tomorrow we will still have good news. Keep giving it all you got Tayton. We are praying for you and hoping you will stay strong and just breathe. We love you so much, mom and dad

2 comments:

Marilyn and Mike said...

Kali and Levi - What mixed blessings, to go from so scary of a phone call to the blessing he was off the ventilator for 12 hours and counting. What a trooper - maybe that was his way of getting rid of the ventilator for a bit, like his daily wiggles! We are so thankful he continues to progress and improve. We think of him daily, from his little steps to his big milestones. These 4 weeks have been filled with the heartache of his suffering, to the hope and faith of his continued recovery. Thank you again for posting every day, You are all in our thoughts and prayers - sleep tight.

Christa said...

Tayton were so proud of you. Keep up the good work! We are glad you got to watch some of the game. Keep getting better and we will be praying for you. Love Carli, Azzie, Austin, and Aunt Christa